"A disease may be rare but hope should not be" There's still love in the air for Rare Disease Day that annually cel...
About a month ago, I saw a post on the 22qawareness group page by a woman named Gemma Keir. She said that the 22q Children book entitled ...
February is identical with Valentines's day, yet it's so much more than that. In this romantic month, people around the world wh...
On January 20th, 4 years ago, I gave birth to the most handsome little boy I have ever met. The boy that shook my whole world, change...
"He looks way more cyanotic now" "Does he gain weight?" The cardiological follow-up visit last Wednesday sta...
Never deny a diagnosis, But do deny the negative verdict that may go with it. -Norman Cousins "Your son can't survi...
International Disability Day 2018 has just passed some weeks ago, and we have a lot to talk about of this day, its significance and after...
"Developmental delays are commas not period, your child can still get there" For the past 3 years, Dario has done more than...
Once we accept our limits, we go beyond them - Albert Einstein Autumn. November. 22q11.2. Awareness Month. In 2016, somebody I kn...
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