On January 20th, 4 years ago, I gave birth to the most handsome little boy I have ever met. The boy that shook my whole world, change...

"He looks way more cyanotic now" "Does he gain weight?" The cardiological follow-up visit last Wednesday sta...

Gene-editing with molecular scissors CRISPR-Cas9 has been a hot topic these past 2 weeks thanks to viral news about one Chinese scienti...

"Developmental delays are commas not period, your child can still get there" For the past 3 years, Dario has done more than...

Once we accept our limits, we go beyond them - Albert Einstein Autumn. November. 22q11.2. Awareness Month. In 2016, somebody I kn...